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Forum
-> Health & Wellness
-> Crohn's & Colitis
amother
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 Wed, Mar 06 2024, 11:20 pm
Hi All,
Looking for people who have experience with ulcerative colitis. I had one dr’s appointment and he said it is likely ulcerative colitis but need to do a colonoscopy to be sure. So I am awaiting that.
I was given medication but honestly it’s been making me feel worse.
I’ve been feeling super overwhelmed because I don’t know what to expect.
This has been ongoing since December I lost like 40 pounds from this.
Anyone has experiance with this? How long after your diagnosis did you begin to feel better?
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amother
Maroon
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Thu, Mar 07 2024, 12:09 am
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Are you on mesalamine? I have ulcerative colitis and take mesalamine but bh I have no pain. I'm sorry you're in pain.
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amother
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Thu, Mar 07 2024, 7:26 am
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Thanks for your response! I’m on mesalamine but it’s not working for me.
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amother
Peony
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Thu, Mar 07 2024, 8:00 am
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My relative is on remicade and it’s working
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simcha12plus
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Thu, Mar 07 2024, 8:03 am
I don’t know much about UC. A family member was diagnosed with it as an older teen. I can see it is a miserable condition. One can never be too far from a bathroom…
The condition has been managed best when avoiding certain kinds of foods.
Are you working with a nutritionist?
Refuah Shelaimah!!!
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amother
DarkYellow
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Thu, Mar 07 2024, 8:07 am
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Please try craniosacral therapy. It really helped me and others that I know tremendously.
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amother
Yarrow
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Thu, Mar 07 2024, 8:14 am
Are you on the oral masalamine or suppositories? The suppositories didnt help my son but the oral did, but it took a good while to work maybe around a month or 6 weeks.
How do they know it's Colitis instead of Crohn's? Did they do blood work and stool sample?
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amother
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Thu, Mar 07 2024, 10:43 am
| happy7 wrote: | I don’t know much about UC. A family member was diagnosed with it as an older teen. I can see it is a miserable condition. One can never be too far from a bathroom…
The condition has been managed best when avoiding certain kinds of foods.
Are you working with a nutritionist?
Refuah Shelaimah!!! |
Thank you!
Yes I just started working with a nutritionist I hope it helps
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amother
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Thu, Mar 07 2024, 10:45 am
| amother Yarrow wrote: | Are you on the oral masalamine or suppositories? The suppositories didnt help my son but the oral did, but it took a good while to work maybe around a month or 6 weeks.
How do they know it's Colitis instead of Crohn's? Did they do blood work and stool sample? |
It’s the Oral. Been taking for around 7 weeks.
I guess they don’t really know yet he just said it sounds Colitus not Chrons.
I had done blood work and stool.
Does your son feel good most days with medication? Does it prevent all flare ups?
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