I'm not handling my son's strep effectively

amother

↑ Canary ↓

Yesterday at 3:35 pm

amother OP wrote:

You are all so kind.

The imamother community is such a lifeline.

I'm reading everything, absorbing, and figuring out how yo go forward.

I'm in Monsey. Can anyone recommend a pandas specialist please?

Dr. Alain Mass. NP Naomi Indich.

amother

↑ OP ↓

Yesterday at 3:52 pm

GiGichai wrote:

Please join the pandas WhatsApp chat for support...you can pm your number to be added...
My son with repeated strep ended up with being underlying lyme disease that had gone undetected for a few months (after being bitten by tick)...
He was also 7 when this started. It is horrifying and scary..
My quick advice is to give motrin round the clock for a few days (antihistamines sometimes help people or make people worse like my son.... motrin works more consistently.)Or at least when he talks about dying or in massive rage...that should calm things quickly.
The next piece of advice, depending where you live, is find a great pandas doctor and head there asap...the faster you kick it, the better off you all will be.
Feel free to message me.

Intersting. What is the link between Lyme and strep?

And thanks, we just stocked up on motrin

amother

Lotus ↓

Yesterday at 4:34 pm

UQT wrote:

Also small tip - discard his current toothbrush after he’s done medication.

Was about to post something similar - when my kids were little we had a round where we had no luck getting rid of strep in the house. Started off with multiple kids having it, went back for a recheck after they finished the meds, some still had, later others did (as in, they were catching it again) - it was a ridiculous merry go round that lasted for a month. The last round of antibiotics the doctor said to dump all the toothbrushes and washcloths (right away - he didn't say to wait till after the meds were done) - and that seems to be what finally cleared it out. I'm guessing we were recontaminating the kids through their toothbrushes/washcloths as we went.

Also, I agree with those who said try a stronger antibiotic - for some of mine amoxicillin works fine, one of mine though consistently couldn't get rid of strep on the first go around and we had to then give him a second (stronger) round of antibiotics. Eventually the pediatrician just declared that that kid got started on the stronger meds right from the start - the regular ones weren't working for him, so it made a lot of sense to me. (I think the stronger one was augmentan but don't hold me to that).

I am so sorry you and your son are having such a hard time right now. Don't worry - you are being a great mom, you are looking out for your little one and IM"H things will be better soon. Hug

marineparkmom ↓

Yesterday at 4:38 pm

The rapid strep test is not as accurate as the overnight. So if you recently had antibiotics for strep it’s best to do an overnight. Also when this happened to my son the doctor gave him a stronger antibiotic ( not amoxicillin) I think it was doxycycline. Definitely go back to your pediatrician (not urgent care) and discuss.

amother

↑ Lotus

Yesterday at 4:39 pm

BTW, OP, have you checked the other people in your house (including you) for strep? It could be he's getting better but then catching it back from someone else in the house who's sick (or is contagious without having much in the way of symptoms). What

amother

↑ OP

Yesterday at 5:03 pm

amother Lotus wrote:

So yes. The way we caught this one, is we checked out two other kids.

All 3 positive.

I sent him along as an afterthought. Unlike his brothers, his symptoms are ongoing, nothing new.

amother

Steelblue

Yesterday at 10:40 pm

If your son is suicidal, this is an emergency. As other posters said:

1. Get in to a PANDAS specialist asap- NP Naomi Indich is in Fairlawn, NJ and she is tops and very caring
2. Do not go back to urgent care for any treatment at all. This is not an urgent care type of problem
3. There are many things that can help, such as Motrin, probiotics for strep etc. but #1 is to get him under the care of a PANDAS specialist.

Hatzlacha!