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Forum
-> Children's Health
amother
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Yesterday at 3:32 pm
You are all so kind.
The imamother community is such a lifeline.
I'm reading everything, absorbing, and figuring out how yo go forward.
I'm in Monsey. Can anyone recommend a pandas specialist please?
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amother
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Yesterday at 3:35 pm
amother OP wrote: | You are all so kind.
The imamother community is such a lifeline.
I'm reading everything, absorbing, and figuring out how yo go forward.
I'm in Monsey. Can anyone recommend a pandas specialist please? | Dr. Alain Mass. NP Naomi Indich.
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amother
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Yesterday at 3:52 pm
GiGichai wrote: | Please join the pandas WhatsApp chat for support...you can pm your number to be added...
My son with repeated strep ended up with being underlying lyme disease that had gone undetected for a few months (after being bitten by tick)...
He was also 7 when this started. It is horrifying and scary..
My quick advice is to give motrin round the clock for a few days (antihistamines sometimes help people or make people worse like my son.... motrin works more consistently.)Or at least when he talks about dying or in massive rage...that should calm things quickly.
The next piece of advice, depending where you live, is find a great pandas doctor and head there asap...the faster you kick it, the better off you all will be.
Feel free to message me. |
Intersting. What is the link between Lyme and strep?
And thanks, we just stocked up on motrin
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amother
Oak
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Yesterday at 3:55 pm
In addition to above suggestions
Make sure Motrin is dye free!
Go to a CST or bodyworker to help calm symptoms and get flow going
Read a light in the dark by Dr Jill Crista
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amother
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Yesterday at 3:57 pm
amother Oak wrote: | In addition to above suggestions
Make sure Motrin is dye free!
Go to a CST or bodyworker to help calm symptoms and get flow going
Read a light in the dark by Dr Jill Crista |
Yikes. It's not!
Is that a problem?
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amother
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Yesterday at 3:58 pm
amother OP wrote: | Yikes. It's not!
Is that a problem? | Lots of kids with pandas react with behaviors to the dye so it may make things worse.
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amother
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Yesterday at 4:01 pm
amother Canary wrote: | Lots of kids with pandas react with behaviors to the dye so it may make things worse. |
Got it. Dye free it is then..
Thank you
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marineparkmom
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Yesterday at 4:38 pm
The rapid strep test is not as accurate as the overnight. So if you recently had antibiotics for strep itโs best to do an overnight. Also when this happened to my son the doctor gave him a stronger antibiotic ( not amoxicillin) I think it was doxycycline. Definitely go back to your pediatrician (not urgent care) and discuss.
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marineparkmom
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Yesterday at 4:39 pm
Also throw out the toothbrushes and sponges every time anyone has strep
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amother
Steelblue
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Yesterday at 10:40 pm
If your son is suicidal, this is an emergency. As other posters said:
1. Get in to a PANDAS specialist asap- NP Naomi Indich is in Fairlawn, NJ and she is tops and very caring
2. Do not go back to urgent care for any treatment at all. This is not an urgent care type of problem
3. There are many things that can help, such as Motrin, probiotics for strep etc. but #1 is to get him under the care of a PANDAS specialist.
Hatzlacha!
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