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-> Crohn's & Colitis
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amother
Midnight
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 Mon, Jul 11 2022, 7:45 pm
Until you get the book, the way to start is to eat chicken soup for a week or two. I kid you not.
I wasn't feeling well last week & was desperate so I was about to do that (turned out to be appendicitis).
Use carrots, celery, onions, garlic in a bag. Don't eat them. Just drink the broth several times a day.
I forget if parsnip is good but sweet potato isn't.
Don't make a 6-hour very rich soup. You want a light soup, e.g. cooked for only a couple of hours. Bones are excellent. Skim the fat.
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amother
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Mon, Jul 11 2022, 8:38 pm
| amother [ OP ] wrote: | Ice coffee? Cheesecake? Assuming you mean the Pareve version of them?
Did you make your own mayonnaise? Says bought mayo isn’t good. |
Ice coffee with certain brand almond milk. Cheese cake with homemade yogurt and farmer cheese
1 or 2 brand mayo OK but tastes horrid. I make my own when needed.
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amother
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Mon, Jul 11 2022, 8:39 pm
| amother [ Midnight ] wrote: | Until you get the book, the way to start is to eat chicken soup for a week or two. I kid you not.
I wasn't feeling well last week & was desperate so I was about to do that (turned out to be appendicitis).
Use carrots, celery, onions, garlic in a bag. Don't eat them. Just drink the broth several times a day.
I forget if parsnip is good but sweet potato isn't.
Don't make a 6-hour very rich soup. You want a light soup, e.g. cooked for only a couple of hours. Bones are excellent. Skim the fat. |
Just the opposite bone broth chicken soup cooked for many many hours is mighty good for inflammation and gut health.do skim the fat.
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amother
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Mon, Jul 11 2022, 9:27 pm
| amother [ Marigold ] wrote: | | Crown’s disease is not terminal. Terminal is you still die from it, you won’tdue from Crohns it’s definitely terrible but not a death sentence |
Crohn's is NOT definitely terrible for everyone.
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amother
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Mon, Jul 11 2022, 9:28 pm
| amother [ OP ] wrote: | The terminology I used is copied from my CT scan report. I wouldn’t use words like terminal without having Dr’s notes say it.
And Crohn’s has terrible side effects and could have bad potential outcome if not taken care of. |
IF NOT TAKEN CARE OF
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amother
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Mon, Jul 11 2022, 9:34 pm
| amother [ Cantaloupe ] wrote: | | Just the opposite bone broth chicken soup cooked for many many hours is mighty good for inflammation and gut health.do skim the fat. |
Will do. I’m assuming you meant don’t skim the fat?
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amother
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Mon, Jul 11 2022, 9:35 pm
| amother [ Apricot ] wrote: | | IF NOT TAKEN CARE OF |
That’s exactly what I said.
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amother
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Mon, Jul 11 2022, 9:35 pm
| amother [ OP ] wrote: | | Will do. I’m assuming you meant don’t skim the fat? |
The real fat I skimmed. Was too fatty for me. But the gelled soup great for inflammation
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amother
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Mon, Jul 11 2022, 9:35 pm
| amother [ Apricot ] wrote: | | Crohn's is NOT definitely terrible for everyone. |
It ain’t great for anyone
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amother
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Mon, Jul 11 2022, 9:37 pm
| amother [ Cantaloupe ] wrote: | Ice coffee with certain brand almond milk. Cheese cake with homemade yogurt and farmer cheese
1 or 2 brand mayo OK but tastes horrid. I make my own when needed. |
Care to elaborate on homemade yogurt? I’d love to know more!
Do you know if the mayo from Primal Kitchen tastes fine?
Farmer cheese is allowed?
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amother
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Mon, Jul 11 2022, 9:38 pm
| amother [ Cantaloupe ] wrote: | | The real fat I skimmed. Was too fatty for me. But the gelled soup great for inflammation |
Gotcha. Thanks so much! Hope you feel better.
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amother
Obsidian
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Mon, Jul 11 2022, 9:41 pm
I highly recommend you take a good look at this website.
It is research based, and helps you reintroduce food in phases.
It is similar to the SCD.
https://www.umassmed.edu/nutri.....daid/
Also, be careful with regards to meds... or no meds.
Speak to the doctor about your plans, you may be advised to start on meds and then hopefully with the help of the AID diet phase them out.
ETA: There are foods listed there that serve as prebiotics and probiotics. You may not be able to tolerate all of them at the beginning, but you work yourself through the phases.
Refuah Sheleimah!
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amother
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Mon, Jul 11 2022, 9:47 pm
| amother [ Obsidian ] wrote: | I highly recommend you take a good look at this website.
It is research based, and helps you reintroduce food in phases.
It is similar to the SCD.
https://www.umassmed.edu/nutri.....daid/
Also, be careful with regards to meds... or no meds.
Speak to the doctor about your plans, you may be advised to start on meds and then hopefully with the help of the AID diet phase them out. |
Definitely consulting my Dr on each step.
Thanks for the reference!
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amother
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Mon, Jul 11 2022, 9:53 pm
| amother [ OP ] wrote: | | It ain’t great for anyone |
You are doing a great disservice to many people by your highly negative statements. One FACT about Crohn's is that every single case is different. Of course no one would volunteer for ANY medical condition, but many many cases of Crohn's are very mild. My son's dr (top in the world) told us that 20% of cases never escalate at all. My son has been under expert care since diagnosis 6 years ago and is BH absolutely fine. He has no pain, he never misses a day of school, he went to yeshiva in Israel no problem. His only dietary restriction is to cut down on sugar which causes inflammation. He is a teenager so he chooses to ignore that. He self injects his medication every other week. It takes 1 minute of his time. His life is so unimpacted by his condition no one except his 2 parents and his drs know about it. Not even his siblings. Not his roommates. So please stop the fear mongering. I wish you much hatzlocha and bracha and a complete refuah shleima. But please understand, your experience is yours alone. Please do not speak for others.
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amother
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Mon, Jul 11 2022, 10:07 pm
| amother [ Apricot ] wrote: | | You are doing a great disservice to many people by your highly negative statements. One FACT about Crohn's is that every single case is different. Of course no one would volunteer for ANY medical condition, but many many cases of Crohn's are very mild. My son's dr (top in the world) told us that 20% of cases never escalate at all. My son has been under expert care since diagnosis 6 years ago and is BH absolutely fine. He has no pain, he never misses a day of school, he went to yeshiva in Israel no problem. His only dietary restriction is to cut down on sugar which causes inflammation. He is a teenager so he chooses to ignore that. He self injects his medication every other week. It takes 1 minute of his time. His life is so unimpacted by his condition no one except his 2 parents and his drs know about it. Not even his siblings. Not his roommates. So please stop the fear mongering. I wish you much hatzlocha and bracha and a complete refuah shleima. But please understand, your experience is yours alone. Please do not speak for others. |
I fail to understand why I’m doing anyone a disservice.
I got diagnosed on Friday and am processing this very big diet change for me and I am allowed to react in whatever way I feel. I also fail to see where I was “highly negative” but anyway…
I’m very happy that your son leads a normal life but for many people suffering with stomach issues aren’t. Believe it or not, some people have no quality of life due to their severe issues. So take your sons pekel and run with it. Because he is bh doing fine that doesn’t mean others are.
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amother
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Mon, Jul 11 2022, 10:17 pm
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Because if I would have read your post when my son was diagnosed I would be sick with fear. It is irresponsible to make blanket statements about any medical condition. Stating how terrible it is is not fair, not accurate and creates stigma. It is exactly because of attitudes like this that my son chooses to keep his condition so private. Every time I read a post about Crohn's I make sure to comment in order to let people know that it does not have to be the end of the world. And it is different for everyone. Definitely early diagnosis and treatment makes a huge difference. It is very important to make clear that many people reach remission and have healthy normal lives. IyH you will too!
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amother
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Mon, Jul 11 2022, 10:18 pm
The diet goes in stages. Read the book first or call Mrs Weiss. Farmer is allowed not at beginning stage. Yogurt is a process the book explains how to make it. Also not in beginning stages.
I also got diagnosed in my 20s. Was difficult to digest.
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amother
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Mon, Jul 11 2022, 10:26 pm
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I am so sorry you are suffering. May HKBH grant you a speedy refuah shleima. I apologize for any pain I caused you. What I am trying to make clear is that Crohn's disease is very varied. One size does not fit all. I hope very soon you will be in remission and feel well and healthy again!
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amother
Green
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Tue, Jul 12 2022, 12:44 am
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A good liquid iron like floradix is good and was lite absorbed. The first symptom I had of crohns was anemia and iron deficiency due to malabsorption caused by the inflammation. Works very quickly and can be gotten at a health food store.
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amother
Stoneblue
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Tue, Jul 12 2022, 1:21 am
While it's definitely worth trying specific diets, sometimes medication is necessary. It may not be preferred, but it isn't the end of the world either, and it's important to keep your options open.
My daughter had lost weight before she was officially diagnosed with Crohn's. We followed a specific restrictive diet for her, but she simply wasn't getting enough calories and her weight was falling dangerously low. She didn't have pain anymore, but she also had no energy. After she started a mild medication and began eating more, she finally gained weight and felt stronger. Iron supplements also helped her. She was doing very well for some time but recently started feeling weak and nauseous again. We are debating between trying other diets, which are time-consuming and often cause considerable stress, or starting the injections the poster above mentioned. Bottom line: this is very manageable, and there can be months of no flare-ups, but don't get hung up on any specific approach before you see what works for your body.
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