Got diagnosed with mild terminal Crohn’s

amother

OP ↓

Mon, Jul 11 2022, 12:49 pm

I’m in my mid-twenties and finally received a diagnosis after testing for years.

What do you know about Crohn’s and where do I start?

Currently follow a dairy-free diet because of the flares they trigger. What exactly is the SCD?

What else do I need to know?

amother

Caramel ↓

Mon, Jul 11 2022, 1:19 pm

Where in the world are you located?

Plenty of people successfully deal with crohns without meds.

Maybe we can get you connected to someone who does alternative.

amother

Lotus

Mon, Jul 11 2022, 1:23 pm

One of the Jewish magazines had an article a few years ago about an effective diet for Leaky Gut Syndrome. Does anyone have it, because IIRC it was helpful with Crohn's.

amother

↑ OP ↓

Mon, Jul 11 2022, 1:30 pm

amother [ Caramel ] wrote:

Where in the world are you located?

Plenty of people successfully deal with crohns without meds.

Maybe we can get you connected to someone who does alternative.

Right now every food is a trigger and gives me tremendous pain.

I'm looking into the SCD diet now which ultimately is where I'll start.

amother

Cantaloupe ↓

Mon, Jul 11 2022, 2:34 pm

I am on the scd diet. Mrs Weiss at wellbees guided me. So far I'm avoiding meds and bh I'm clear for a year.

amother

↑ OP ↓

Mon, Jul 11 2022, 2:49 pm

amother [ Cantaloupe ] wrote:

I am on the scd diet. Mrs Weiss at wellbees guided me. So far I'm avoiding meds and bh I'm clear for a year.

I’ll reach out, thanks.

Can you share some ideas of what you eat daily? Any tips?

Is dark chocolate allowed at all?

amother

↑ OP ↓

Mon, Jul 11 2022, 2:56 pm

Do you also have anemia and take something to help with that?

amother

↑ Caramel

Mon, Jul 11 2022, 3:09 pm

Why dont you buy the book? Its extremely specific, you probably will get a lot of use looking things up all the time until you get the hang of it.

amother

Marigold

Mon, Jul 11 2022, 3:51 pm

Crown’s disease is not terminal. Terminal is you still die from it, you won’tdue from Crohns it’s definitely terrible but not a death sentence

amother

↑ Cantaloupe ↓

Mon, Jul 11 2022, 3:56 pm

amother [ OP ] wrote:

I’ll reach out, thanks.

Can you share some ideas of what you eat daily? Any tips?

Is dark chocolate allowed at all?

No chocolate or cocoa.

Eggs. Chicken tuna meat. Muffins crackers. Fruits vegetables. Ice coffee. Cheese cake.

amother

↑ Cantaloupe ↓

Mon, Jul 11 2022, 3:56 pm

The book is definitely a way to start. I wanted personalized guidance so I went with Mrs Weiss. Was worth every penny for me.

amother

Puce

Mon, Jul 11 2022, 4:26 pm

amother [ Marigold ] wrote:

Crown’s disease is not terminal. Terminal is you still die from it, you won’tdue from Crohns it’s definitely terrible but not a death sentence

Maybe she means where in the tract it is.

OP also check out specificcarbohydratedietassociation.org.

amother

Banana

Mon, Jul 11 2022, 4:33 pm

amother [ Marigold ] wrote:

Crown’s disease is not terminal. Terminal is you still die from it, you won’tdue from Crohns it’s definitely terrible but not a death sentence

Crohn’s is not usually fatal or life threatening — if it’s treated properly. Untreated Crohn’s can lead to life threatening complications.

https://www.healthline.com/hea.....octor

Crohn’s in the ileum (the last part of the small intestine) may be called ileal or sometimes ‘terminal ileal’ Crohn’s – because it is affecting the terminus or end of the ileum.

amother

Celeste

Mon, Jul 11 2022, 6:22 pm

You can try to PM the Instagram account wellness redefined.

https://instagram.com/wellness.....xMjQ=

She’s helped lots of people with these issues.

amother

↑ OP ↓

Mon, Jul 11 2022, 7:16 pm

amother [ Marigold ] wrote:

Crown’s disease is not terminal. Terminal is you still die from it, you won’tdue from Crohns it’s definitely terrible but not a death sentence

The terminology I used is copied from my CT scan report. I wouldn’t use words like terminal without having Dr’s notes say it.

And Crohn’s has terrible side effects and could have bad potential outcome if not taken care of.

amother

↑ OP ↓

Mon, Jul 11 2022, 7:17 pm

amother [ Banana ] wrote:

Exactly. Thank you for clarifying!

amother

↑ OP ↓

Mon, Jul 11 2022, 7:18 pm

amother [ Puce ] wrote:

Maybe she means where in the tract it is.

OP also check out specificcarbohydratedietassociation.org.

Thank you! I will check it out.

amother

↑ OP ↓

Mon, Jul 11 2022, 7:19 pm

amother [ Cantaloupe ] wrote:

No chocolate or cocoa.

Eggs. Chicken tuna meat. Muffins crackers. Fruits vegetables. Ice coffee. Cheese cake.

Ice coffee? Cheesecake? Assuming you mean the Pareve version of them?

Did you make your own mayonnaise? Says bought mayo isn’t good.