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Forum
-> Health & Wellness
-> Crohn's & Colitis
amother
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 Wed, Sep 25 2024, 8:41 pm
Anyone has experience using LDN instead of biological infusions? Or any other oral meds instead of infusions with great results. Please 🙏🏻 help me know more about this and how I can help my daughter (ibd)
Any doctors in NY I can consult regarding LDN who would prescribe and monitor progress?
Please help
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anonymrs
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Wed, Sep 25 2024, 9:00 pm
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There's a lot of research on using ldn for Crohn's. You can pm me.
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amother
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Wed, Sep 25 2024, 9:07 pm
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I did a course of steroids followed by an anti inflammatory med to keep it stable , not a strong med, instead of infusions. May have to switch to infusions but hope not to
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amother
Papaya
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Wed, Sep 25 2024, 9:15 pm
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I lost my appetite on naltrexone and dropped 20 lbs in a few months. Be careful.
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amother
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Wed, Sep 25 2024, 9:17 pm
| anonymrs wrote: | | There's a lot of research on using ldn for Crohn's. You can pm me. |
Thankyou. Sent you pm
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amother
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Wed, Sep 25 2024, 9:18 pm
| amother Papaya wrote: | | I lost my appetite on naltrexone and dropped 20 lbs in a few months. Be careful. |
Wow. Was dose too high too fast. I read it needs to be built up slowly and monitored closely
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amother
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Wed, Sep 25 2024, 9:19 pm
| amother Aquamarine wrote: | | I did a course of steroids followed by an anti inflammatory med to keep it stable , not a strong med, instead of infusions. May have to switch to infusions but hope not to |
If it’s ok please mention name of anti inflammatory med. is it safe long teen? Ty
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amother
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Thu, Sep 26 2024, 12:42 pm
Hi
Bumping it up for more responses
Ty
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amother
Peru
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Thu, Sep 26 2024, 1:32 pm
| amother Papaya wrote: | | I lost my appetite on naltrexone and dropped 20 lbs in a few months. Be careful. | LDN works differently from standard naltrexone.
OP there's quite a bit of research on this. I came across some from an Israeli team recently.
If you need a dr to rx , you can try https://ldndoctor.com/?gad_sou.....w_wcB
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amother
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Mon, Sep 30 2024, 11:37 am
| amother OP wrote: | | If it’s ok please mention name of anti inflammatory med. is it safe long teen? Ty |
Azulfindine, yes we are using long term
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BusyBoys
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Mon, Sep 30 2024, 11:46 am
Currently on biological infusions.
But, for many years I’ve been on anti inflammatory med -mesalamine ( from teenage years) which came after a cycle of steroids.
I had done steroids- mesalamine twice ( total of 15 yrs) before I switched up to biologics.
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