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-> Parenting our children
-> Our Challenging Children (gifted, ADHD, sensitive, defiant)
amother
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 Thu, Sep 19 2024, 7:10 pm
I’d say I’m mortified but at this point I’m more worried than embarrassed. We’ve been toilet training since last summer, child wears pull-ups to preschool. This was the second accident of the day, only made it onto the toilet once.
Is there any realm in which this might still be considered normal? Dc has sensory issues that we think might be causing the toileting issues, but I’ve also been referred to a psychologist for psychological evaluation. What could an evaluation show?
Dc has seizures that are being controlled by medication so I don’t think this is causing the problem at the moment.
I’m trying to read up on sensory issues and take dc for OT twice a week, was thinking if I should go to a urologist to rule out medical issues but we’ve been running around with dc so much that pediatrician said to get psychological evaluation done first.
Interested in hearing others thoughts on this.
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amother
Bronze
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Thu, Sep 19 2024, 7:13 pm
| amother OP wrote: | I’d say I’m mortified but at this point I’m more worried than embarrassed. We’ve been toilet training since last summer, child wears pull-ups to preschool. This was the second accident of the day, only made it onto the toilet once.
Is there any realm in which this might still be considered normal? Dc has sensory issues that we think might be causing the toileting issues, but I’ve also been referred to a psychologist for psychological evaluation. What could an evaluation show?
Dc has seizures that are being controlled by medication so I don’t think this is causing the problem at the moment.
I’m trying to read up on sensory issues and take dc for OT twice a week, was thinking if I should go to a urologist to rule out medical issues but we’ve been running around with dc so much that pediatrician said to get psychological evaluation done first.
Interested in hearing others thoughts on this. |
Are the seizure meds by any chance causing a loss of bladder control?
I don’t see why it hurts to visit the urologist so you can rule that out, unless you really don’t want to take your child to another Dr at this point.
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amother
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Thu, Sep 19 2024, 7:17 pm
| amother Bronze wrote: | Are the seizure meds by any chance causing a loss of bladder control?
I don’t see why it hurts to visit the urologist so you can rule that out, unless you really don’t want to take your child to another Dr at this point. |
The accidents were happening way before we started the medication. Of course it doesn’t hurt, just following pediatricians recommendation. But maybe I should push for urology referral.
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amother
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Thu, Sep 19 2024, 7:19 pm
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Did you deal with constipation? It’s usually the cause. If not is it possible he’s having absence seizures and losing control then?
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amother
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Thu, Sep 19 2024, 7:21 pm
If dc is toilet trained, why do they wear pullups?
Seizures can cause neuro-psychological issues even if they're controlled. And if they are having trouble controlling their bladder I'd suspect maybe they're not being fully controlled.
Also, hate to say this but the seizures+the wetting issues scream pandas/pans/AE to me. Both the loss of control, but also the somewhat intentional peeing not in the toilet. Plus the sensory issues (ocd???) Which is another red flag.
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amother
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Thu, Sep 19 2024, 7:29 pm
| amother Fuchsia wrote: | If dc is toilet trained, why do they wear pullups?
Seizures can cause neuro-psychological issues even if they're controlled. And if they are having trouble controlling their bladder I'd suspect maybe they're not being fully controlled.
Also, hate to say this but the seizures+the wetting issues scream pandas/pans/AE to me. Both the loss of control, but also the somewhat intentional peeing not in the toilet. Plus the sensory issues (ocd???) Which is another red flag. |
Seizures have no connection to pandas please stop negating real serious medical issues. It’s dangerous and rude.
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amother
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Thu, Sep 19 2024, 7:30 pm
| amother Burlywood wrote: | | Did you deal with constipation? It’s usually the cause. If not is it possible he’s having absence seizures and losing control then? |
No constipation at all, bh. Went number two twice in the toilet today. It’s specifically an issue we have with number one. Dc has focal seizures, so no absence seizures.
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amother
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Thu, Sep 19 2024, 7:33 pm
| amother Fuchsia wrote: | If dc is toilet trained, why do they wear pullups?
Seizures can cause neuro-psychological issues even if they're controlled. And if they are having trouble controlling their bladder I'd suspect maybe they're not being fully controlled.
Also, hate to say this but the seizures+the wetting issues scream pandas/pans/AE to me. Both the loss of control, but also the somewhat intentional peeing not in the toilet. Plus the sensory issues (ocd???) Which is another red flag. |
Did I say dc is toilet trained? I said we’ve been struggling to toilet train since last year summer.
I also can’t handle people saying pandas to everything, I’m sorry but seizures are enough in and of itself. Why bring pandas into the mix?
Will a psychologist be able to diagnose neuro-psychological problems? Wondering why I’m being sent to psychologist vs neuro psychologist.
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amother
Azalea
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Thu, Sep 19 2024, 7:34 pm
| amother OP wrote: | I’d say I’m mortified but at this point I’m more worried than embarrassed. We’ve been toilet training since last summer, child wears pull-ups to preschool. This was the second accident of the day, only made it onto the toilet once.
Is there any realm in which this might still be considered normal? Dc has sensory issues that we think might be causing the toileting issues, but I’ve also been referred to a psychologist for psychological evaluation. What could an evaluation show?
Dc has seizures that are being controlled by medication so I don’t think this is causing the problem at the moment.
I’m trying to read up on sensory issues and take dc for OT twice a week, was thinking if I should go to a urologist to rule out medical issues but we’ve been running around with dc so much that pediatrician said to get psychological evaluation done first.
Interested in hearing others thoughts on this. |
You mean he pulled down his pants and purposely peed on the ground? If yes that’s normal at this age. He’s only 4. Typical boy silliness
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amother
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Thu, Sep 19 2024, 7:38 pm
| amother Burlywood wrote: | | Seizures have no connection to pandas please stop negating real serious medical issues. It’s dangerous and rude. | Here is an interview with Dr. Susan Swedo, a leading pandas researcher at the NIH. She states unequivocally that pandas is a form of Autoimmune encephalitis, and that seizures are a known symptom of autoimmune encephalitis
https://aspire.care/families-p.....itis/
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amother
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Thu, Sep 19 2024, 7:38 pm
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I’d go to a neuropsych to rule out other issues. I’d also ask for another eeg to rule out absence seizures. I have a family member on seizure meds, when it’s not fully under control even though we don’t see full seizures we can see the after effects of one. And usually if that happens we need to change the meds or up it. So I’d look into that too. It took us many years to get the dosage and meds correct.
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amother
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Thu, Sep 19 2024, 7:43 pm
| amother OP wrote: | Did I say dc is toilet trained? I said we’ve been struggling to toilet train since last year summer.
I also can’t handle people saying pandas to everything, I’m sorry but seizures are enough in and of itself. Why bring pandas into the mix?
Will a psychologist be able to diagnose neuro-psychological problems? Wondering why I’m being sent to psychologist vs neuro psychologist. | I'm sorry. I was genuinely trying to help. Seizures are a lot to deal with and I'm sure you're both suffering. The reason I mentioned it is because a lot of people don't know that pandas can be a cause of Seizures. Not just 2 separate issues.
But if you find this offensive I won't post anymore. I hope this doesn't hurt you further.
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amother
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Thu, Sep 19 2024, 8:11 pm
| amother Burlywood wrote: | | I’d go to a neuropsych to rule out other issues. I’d also ask for another eeg to rule out absence seizures. I have a family member on seizure meds, when it’s not fully under control even though we don’t see full seizures we can see the after effects of one. And usually if that happens we need to change the meds or up it. So I’d look into that too. It took us many years to get the dosage and meds correct. |
Neuropsych rather than psychologist?
I’m also not understanding, you think my child might have absence AND focal seizures? Wouldn’t the medication work for both? I’m confused.
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amother
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Thu, Sep 19 2024, 8:13 pm
| amother Fuchsia wrote: | I'm sorry. I was genuinely trying to help. Seizures are a lot to deal with and I'm sure you're both suffering. The reason I mentioned it is because a lot of people don't know that pandas can be a cause of Seizures. Not just 2 separate issues.
But if you find this offensive I won't post anymore. I hope this doesn't hurt you further. |
I’m sorry, it’s just really been a rough day. Daily accidents are not fun, and so so exhausting.
The reason I’m so nervous about pandas is because I know nothing about it, and also since I was told that sometimes people treat even when bloodwork is ok. How could I do that? My child is already taking daily meds… I don’t know how I would deal with another really big issue.
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amother
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Thu, Sep 19 2024, 8:14 pm
| amother Azalea wrote: | | You mean he pulled down his pants and purposely peed on the ground? If yes that’s normal at this age. He’s only 4. Typical boy silliness |
No. Peed through clothing in a circle onto the floor while sitting on the pavement.
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amother
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Thu, Sep 19 2024, 8:15 pm
| amother OP wrote: | Neuropsych rather than psychologist?
I’m also not understanding, you think my child might have absence AND focal seizures? Wouldn’t the medication work for both? I’m confused. |
They might need a different medication. And you would need to adjust until both are under control. It often does go together. A psychologist will just do talk therapy. A neuropsych does testing of everything brain related, can diagnose many things if any are the issue. Anything behavior, mental etc..
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amother
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Thu, Sep 19 2024, 8:18 pm
| amother OP wrote: | I’m sorry, it’s just really been a rough day. Daily accidents are not fun, and so so exhausting.
The reason I’m so nervous about pandas is because I know nothing about it, and also since I was told that sometimes people treat even when bloodwork is ok. How could I do that? My child is already taking daily meds… I don’t know how I would deal with another really big issue. | If this was something you wanted to pursue, you would see a pandas specialist.
The hope in treating pandas would be that the seizures would fall away.
From your later description of the accident it sounds very much like it could be breakthrough seizures. I would for sure bring it up with her treating neurologist. I originally thought you meant she *intentionally* peed outside on the sidewalk, which us very pandas-ish. But the info on pandas causing seizures is still true.
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amother
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Thu, Sep 19 2024, 8:20 pm
| amother Fuchsia wrote: | If this was something you wanted to pursue, you would see a pandas specialist.
The hope in treating pandas would be that the seizures would fall away. |
Do you know of any cases where pandas was healed? Because I don’t.
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amother
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Thu, Sep 19 2024, 8:21 pm
| amother Burlywood wrote: | | Do you know of any cases where pandas was healed? Because I don’t. | In remission, yes. Many. No longer having seizures or greatly reduced incidence of seizures, absolutely.
One famous case is susannah cahalan. She wrote a book and there's a movie about her. She developed psychosis and seizures out of the blue and was inpatient in a psych unit. Eventually she was diagnosed with AE, treated for it, and now lives a completely normal, healthy, medication free life.
But I don't want to hijack OPs thread with pandas posts if this isn't the direction she wants to take.
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amother
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Thu, Sep 19 2024, 8:29 pm
| amother Burlywood wrote: | | They might need a different medication. And you would need to adjust until both are under control. It often does go together. A psychologist will just do talk therapy. A neuropsych does testing of everything brain related, can diagnose many things if any are the issue. Anything behavior, mental etc.. |
Surprised my pediatrician wouldn’t send me straight to neuropsychologist. Any recommendations for top specialists?
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