Can blood test re-do show negative for celiac?

amother

OP ↓

Mon, Nov 04 2024, 2:18 pm

dd blood test shows celiac doc said to re-do to make sure , is there such a thing as it being a fluke? Obviously Hashem can do anything
Just wondering if anyone has heard of it ? that doc would make us re-do it ?

amother

Blushpink ↓

Mon, Nov 04 2024, 4:16 pm

The celiac blood test is extremely accurate and has a very low false positive.
Which blood test did she have and how high was the numbers?
When I was first diagnosed several years ago I was grateful to have a reason and even more grateful that of all the different things it could have been, celiac is quite straightforward. Avoid gluten and you're okay.

amother

↑ OP

Mon, Nov 04 2024, 4:19 pm

amother Blushpink wrote:

Doc said 100 on the labs which he said is very high
I don't know the exact name of the tesf if it's celiac or something just for gluten intolerance , he wants us to re do labs I really hope it's not celiac I'd prefer intolerance!

amother

Antiquewhite

Mon, Nov 04 2024, 4:22 pm

My dr did the same. A gastro I had for another kids said I can rely on the negative.
My first positive was not so high. It was borderline positive.
I figure I can always ask to test again.

amother

Goldenrod

Mon, Nov 04 2024, 4:24 pm

A few of my kids tested positive with bloodwork and negative endoscopy and also afterwards negative for bloodwork again. If there is inflammation in the body it can show up as a temporary positive and then revert back to normal.

amother

Lightblue

Mon, Nov 04 2024, 4:27 pm

amother OP wrote:

The blood test shows gluten antibodies, so if the person being tested has been minimizing or avoiding gluten recently the new test will not be accurate.
AFAIK 100 is high. My daughter test result was 18 and was sent for an endoscopy to confirm, which was positive. BH after a year and a half on a gluten free diet it's below 3 and she has grown beautifully.

amother

Celeste

Yesterday at 1:30 pm

amother Goldenrod wrote:

Bump. Did they test positive with very high numbers and all the 5 antibodies? What does “positive” mean?

amother

↑ Blushpink ↓

Yesterday at 1:59 pm

amother Celeste wrote:

Bump. Did they test positive with very high numbers and all the 5 antibodies? What does “positive” mean?

Which blood test are you referring to? The ttg-iga blood test is known to be very accurate with a very low false positive rate, something like over 90%. I was told the range of 5-20 is considered positive. Mine for comparison was over 300.

amother

DarkGreen

Yesterday at 2:29 pm

I didn’t read the whole thread but celiac is NOT diagnosed with a blood test!!!

amother

↑ Blushpink

Yesterday at 2:49 pm

amother DarkGreen wrote:

I didn’t read the whole thread but celiac is NOT diagnosed with a blood test!!!

Because today's blood tests are so much more accurate, if the levels are high enough, they don't insist on a endoscopy and biopsy to confirm. At least with children, or so my doctor explained. The false positive rate is over 90%. I did have endoscopy where they took samples and confirmed celiac after that. But the doctor did explain that because my levels were so high, they would diagnose even without it. And he explained that in children they don't put them through the whole procedure if it isn't necessary.

amother

Geranium

Yesterday at 3:20 pm

Hi, what were the symptoms that your kids had that made you test for celiac. My daughters stomach bothers her on and off. Not very badly, but she sometimes also feels nauseous. Trying to figure out whats going on, so wanted to hear what other pples symptoms were. (It could be constipation, but Im not sure)