Tell me why you don't believe in pandas

amother

↑ Waterlily ↓

Yesterday at 9:56 pm

amother Banana wrote:

Crutch as opposed to what diagnosis?
What if the overall diagnosis is brain inflammation and bringing it down helps relieve whatever behaviours we are seeing?
One of my children has severe afrid as part of his disease profile...yet 24 hours after starting a new antibiotics, he had tasted and eaten 3 new foods no problem? And what if, any time he is sick/flaring, he goes back to arfid?
What if anorexia, bipolar, severe odd is all caused by brain inflammation and treating it cures it? Etc. Etc.
That is what I am telling you...
Think outside the box...
When I say maybe your child has pandas or lyme, I am really saying, based on my experience, these conditions/behaviours may very well be caused by brain inflammation and please look into that so you can heal...(and what is triggering the inflammatory response cam literally be any bacteria or virus).
Do you know that when they have evidence of c diff and parasites in the brains of dead alzheimers patients? How did it get there? Science is fluid and changing...
Did you know that the reason we treat strep as serious is because it can cause rheumatic fever? Autoimmune Attack of the heart? If strep can attack the heart, what is stopping it from attacking the brain? And what does it look like if it does?
What is stopping any bacteria or virus or parasite or fungus from getting into the brain? And what does it look like if it does? Is it bacteria in the brain or autoimmune or inflammatory cytokines attacking the brain?
Why cant autism have been caused by an autoimmune attack on a very young baby's brain after a virus or illness before they arr two? Especially regressive autism where they lose the skills they had before?
There is fascinating research being done and studies galore to explore if this interests you.
But do NOT put out a blanket statement that most kids dont have pandas...and parents are using the diagnosis as a parenting copout.

Brain inflammation is not a thing. I mean it is but not in the context you are using it. It’s an endless hole of torturing the kid and they get no relief. I don’t know why our community was pulled into this so deeply.

amother

↑ NeonPurple ↓

Yesterday at 9:58 pm

amother Waterlily wrote:

Anyone can write medical articles, anyone can do a study on 10 people. Doesn’t mean it’s the truth. It’s a trendy movement and yes many doctors are making money from all the desperate people that are paying an arm and a leg for them to sell their cures. This is not proof of anything. The majority of the medical field can easily see that it is being used as a cover up for many other issues.

There are literally thousands upon thousands of scientific articles on immune dysfunction in the development of ASD. This isn't a fad. It's cutting edge. Anyone who doesn't see this is not following the science.

Try asking chatGPT about the role of neuroinflammation in ASD.

amother

↑ Banana

Yesterday at 10:00 pm

amother Waterlily wrote:

Really? Anyone can have their study published in real medical journals? Are you serious?!?
Do you know there is a famous psychiatrist who coined and wrote the book on childhood bipolar over 40 years ago now sees that 90 percent of her patients, when tested for tick borne disease are positive? And treating them for lyme and co treats their bipolar as well?
Just because you say it ain't so, dont make it so.
And look up her name...dr. rosalie greenberg

And the majority of the medical field say it's a cover up for WHICH issues?
The majority of the medical field are way behind the newest research and medicine. Or else you would have no need for chaim.medical etc if cv you get sick etc...because ur majority isnt up to date on the latest, best research and treatment.

amother

↑ Purple ↓

Today at 12:17 am

amother NeonPurple wrote:

Those parents are right.

Guess what's a major driver of ASD?

Neuroinflammation.

https://pmc.ncbi.nlm.nih.gov/a.....9953/

https://psychiatryonline.org/d.....22004

https://www.nature.com/article.....902-8

https://pubmed.ncbi.nlm.nih.gov/31029798/

https://www.mdpi.com/1422-0067/24/6/5487

these articles don't prove causation. Correlation does not equal causation. its also possible that it works the other way around. It can be that brain inflammation causes some ASD like tendencies, that does not mean that all ASD is caused by brain inflammation

amother

↑ Purple ↓

Today at 12:22 am

amother Banana wrote:

childhood bipolar is extremely rare so yes, if someone is being diagnosed with bipolar before the age of 15 they are likely being misdiagnosed

amother

↑ Waterlily ↓

Today at 12:27 am

amother NeonPurple wrote:

I’m glad you told us you use ChatGPT. You realize we can’t take you seriously. And yes anyone can get published. And yes anyone can put 6 cases together and write a summary and decide it proves whatever they want to prove. And yes you are being misled by people who have an agenda of making money preying on the weak and desperate. This isn’t cutting edge it’s going backwards and undoing all the steps forward. It’s undoing all the strides in mental health, in child development, in parenting, in asd, adhd, anxiety disorders etc.. it’s kinda sad to watch people being pulled into this black hole.

amother

↑ Waterlily

Today at 12:29 am

amother Cinnamon wrote:

Wow! I’m shocked by some of these responses pandas/brain inflammation is real. All you people denying it, be happy you never experienced a child with it.
It is clear as night and day,and yes a lot of mental illness is being misdiagnosed when all
it is, is brain inflammation. Look at the research.
Most drs believe in pandas by now. Why is that?

They don’t believe in a lifelong diagnosis. They believe in the temporary condition that is treated with antibiotics and then it’s gone. They also believe anxiety, asd, adhd, bad parenting, dysfunctional homes, and other issues exist and can also be the cause of behaviors. The answer isn’t always pandas. And if you think it is then you drank the kool aid.

amother

↑ Purple ↓

Today at 12:37 am

amother Cinnamon wrote:

youre conflating two points. Just because something exists in certain circumstances, does NOT mean that it is the cause for everything. The problem I have with it, is that it is becoming a religion, almost cult like. You need to keep ur mind open, and not allow yourself to get brainwashed in any direction.
Also what do you say about all the people that "healed" from their ASD or ADHD like tendencies by actually putting the hard work in, and learning to manage themselves in society? How could that be? If it really was brain inflammation, no therapy in the world could heal something medical

amother

↑ Cinnamon ↓

Today at 12:44 am

amother Waterlily wrote:

Of course it’s not always the answer but pandas is a chronic autoimmune condition, which is genetic and therefore you see some families with a few kids that are suffering from it. No it is not the answer to everything but it should definitely be ruled out.

amother

↑ Purple ↓

Today at 12:50 am

amother Cinnamon wrote:

yes, if ur child's symptoms actually match up to the definition (I.e. sudden onset...) then please check it out. But, don't bend the definition to fit ur needs. And if ur kid has been having speech delays since they are born, and is exhibiting typical ASD behaviors throughout development, they should NOT pursue this path. Its a red herring.

amother

↑ Cinnamon

Today at 12:51 am

[quote="amother Purple"]youre conflating two points. Just because something exists in certain circumstances, does NOT mean that it is the cause for everything. The problem I have with it, is that it is becoming a religion, almost cult like. You need to keep ur mind open, and not allow yourself to get brainwashed in any direction.
Also what do you say about all the people that "healed" from their ASD or ADHD like tendencies by actually putting the hard work in, and learning to manage themselves in society? How could that be? If it really was brain inflammation, no therapy in the world could heal something medical[/quote

I agree with you. Not everyone with asd,adhd has pandas although neuroatypical kids are more susceptible to it, so it can be a combination.

amother

↑ Purple

Today at 12:58 am

[quote="amother Cinnamon"]

amother Purple wrote:

where I differ might be that I believe PANDAS is the exception. It is more likely that someone has ASD, ADHD, OCD - alone, without PANDAS being the root cause.