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Forum -> Parenting our children -> Our Challenging Children

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TwinsMommy

Wed, Sep 04 2024, 5:40 pm

amother Pink wrote:

Not in NJ

I'm not in NJ but my twins have medicaid waivers in Ohio. I'm surprised NJ doesn't have??

Just searching google..... does this not apply to you? https://www.medicaid.gov/medic.....82571

My understanding is that there are 3 ways to get medicaid for a disabled child....

1) be low income and your whole family gets it or just your children if you're a little higher income

2) be low income (but not as low as #1) and your child is approved for SSI payments which come with SSI medicaid

3) get a medicaid waiver. We have a few here in Ohio that apply to disabled children and adults.

If truly no medicaid waiver that applies to your situation in NJ..... see if your child could medically and financially qualify for SSI.

amother

Yolk

Wed, Sep 04 2024, 6:40 pm

Even in NJ there should be OPWDD.

amother

↑ Pink

Wed, Sep 04 2024, 6:59 pm

amother Yolk wrote:

Even in NJ there should be OPWDD.

The child must need a 24 hour nurse to be eligible for the waiver in NJ. Even though my child has hundreds of seizures a day, the fact that they don’t need medical intervention to stop it means that she’s not eligible. She would need to be resuscitated regularly to be accepted.

I’ve tried to get her on Medicaid.

amother

↑ Plum

Wed, Sep 04 2024, 7:17 pm

I am in CA and can't get it.
We need to go through regional center and have our kid get approved. Only very specific developmental or medical disabilities count and only if they meet strict severity. They won't approve my kid. My kid has ASD, one of the criteria. An outside psychological testing AND their testing prove it. But because my kid can possibly cope in the world and is now verbal - nope. No help at all.

The system is crazy. My kid is disabled but "not enough". It is enough to drive us bonkers and impair my kids life but ZERO help. It all has to go to illegals. I was told that if I lived in the zipcodes where more "minority and undocumented live" we would likely be covered. Even if my kid wasn't a citizen. Banging head

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