NEW Update: Yochanan Meir ben Shira Yisraela

amother

Tulip

Fri, Jan 26 2024, 4:19 am

Mazel tov!
Just came accross your thread for the first time and see that your first post was the day my preemie went into hospital for her second heart surgery.
She's bH doing amazing now.
If your baby does end up having to come home tube feeding don't worry about it. It's really not such a big deal. My baby tube fed for 7 months.

↑ boysrus

Fri, Jan 26 2024, 9:47 am

mazal tov! have been davening for him all along and will continue to do so with his new name. He should be healthy and strong ad meah v'esrim!!!

amother

↑ Broom

Fri, Jan 26 2024, 9:55 am

amother OP wrote:

Thank you all so much 💛💛💛

Is it crazy that I’m worried about whether he will have attachment issues from not being home with us for his first few/several months?

You’re not crazy for worrying about this. It’s so challenging but try to be with him the NICU as much as possible and do as much holding and skin to skin as you can when you are there. You are amazing holding on with a baby in NICU for so long. Mazel tov on his bris, such a beautiful name.

↑ TranquilityAndPeace ↓

Tue, Jan 30 2024, 2:51 pm

Mazel Tov!!!! We are davening and awaiting more positive updates soon IYH!

amother

↑ OP ↓

Tue, Jan 30 2024, 5:49 pm

Thank you, ladies! BH the MRI came back fine, we are mainly focusing on feeding issues right now. Hoping to avoid him needing a G-tube, but it may end up being our best option.

amother

Forestgreen

Tue, Jan 30 2024, 5:58 pm

amother Broom wrote:

I also worried about attatchment issues with my NICU baby. I couldn't nurse, and even when he came home he was being fed via a feeding pump which was frequently done by a nurse.

But BH I have an extremly close relationship with him, think even closer then some of my others. All you can do is your best...and to H-shem leave the rest!

amother

↑ OP ↓

Tue, Jan 30 2024, 6:23 pm

amother Amethyst wrote:

OP, have you gotten a diagnosis yet?

Their best guess is MIS-N - multisystemic inflammatory syndrome in neonates.

amother

Apple

Tue, Jan 30 2024, 6:25 pm

amother OP wrote:

Their best guess is MIS-N - multisystemic inflammatory syndrome in neonates.

How do they treat that?

amother

↑ Amethyst ↓

Tue, Jan 30 2024, 6:28 pm

amother OP wrote:

Their best guess is MIS-N - multisystemic inflammatory syndrome in neonates.

If you would be willing to email or PM me, I may have a lead for you. If you want, let me know and I'll post under my screen name or an anonymous email.

amother

↑ OP ↓

Tue, Jan 30 2024, 6:30 pm

amother Apple wrote:

How do they treat that?

Steroids and anti-inflammatories. BH his inflammation is mostly gone now, so we are working on feeding skills. So grateful that he is so much healthier now 🥰

amother

↑ OP ↓

Tue, Jan 30 2024, 9:14 pm

amother Amethyst wrote:

If you would be willing to email or PM me, I may have a lead for you. If you want, let me know and I'll post under my screen name or an anonymous email.

Thank you so much, if you want to post an anonymous email address that would be great. Thank you!

amother

↑ Amethyst ↓

Tue, Jan 30 2024, 10:46 pm

amother OP wrote:

Thank you so much, if you want to post an anonymous email address that would be great. Thank you!

Got it

amother

↑ Ghostwhite ↓

Tue, Jan 30 2024, 11:21 pm

amother OP wrote:

Thank you, ladies! BH the MRI came back fine, we are mainly focusing on feeding issues right now. Hoping to avoid him needing a G-tube, but it may end up being our best option.

B’H! That’s great news!

Re gtube- if it comes to that, just give a shout and happy to be of assistance if needed.

(For us it was the best decision and so so much easier than dealing with an NG tube)

amother

↑ Birch

Wed, Jan 31 2024, 12:35 am

amother OP wrote:

UPDATE: BH BH Little Birdie was cleared for a brief “leave of absence” from the hospital, so he could have his bris! He will still be hospitalized for the next several weeks for feeding and other issues, but chasdei Hashem both the mohel and medical team declared him healthy enough for a bris.

Please continue to daven for a refuah sheleimah for Yochanan Meir ben Shira Yisraela b’karov so he can come home (hopefully without needing additional surgeries)!

Mazel Tov on the bris!!!

amother

↑ OP ↓

Fri, Feb 16 2024, 1:59 pm

Happy 4-month birthday tonight, sweet little Yochanan, עמו״ש. We hope and daven that you will be able to come home ASAP bezH. Have a good Shabbos Little Birdie. 🐥💗

↑ TranquilityAndPeace ↓

Fri, Feb 16 2024, 2:49 pm

amother OP wrote:

Happy 4-month birthday tonight, sweet little Yochanan, עמו״ש. We hope and daven that you will be able to come home ASAP bezH. Have a good Shabbos Little Birdie. 🐥💗

Amen!!!