Encopresis- new ideas??

amother

↑ OP ↓

Mon, Feb 12 2024, 12:13 pm

amother Aster wrote:

Hugs! So not fun to be dealing with this :-(

My son had a very hard time with the sitting so we bought a cheap imitation "Gameboy" from Amazon and he can ONLY use it when he sits. If that's not motivating for your son you need to find something that is (reading a book, listening to a CD, subscription to the Loop, etc.) so the sitting will not be so aversive to him.

I also found that using the positive helped a lot (e.g., "You can have this Gameboy as soon as you're on the toilet. I can't wait to see how it works!" versus "You can't have this unless you're on the toilet.")

I’ve tried everything sadly. Been at this for 3 years… it’s so hard I wish he would just do what he has to to make it better but he’s so strong willed

amother

↑ Orange ↓

Mon, Feb 12 2024, 12:14 pm

amother Canary wrote:

Do u test for the parasites or just treat them? Been desperately trying to figure out #1 accidents and nighttime wake ups with my daughter but she doesn’t itch down there or wake up at midnight necessarily…

Just treat. My kids don't wake up at all.
If it's really bad you can see it on the poop and often on their bottom immediately after going (it goes back in)
If you treat with herbal you'll see a LOT of them come out with #2 within a day or two (Meds paralyze them so you won't necessarily see it.)
sorry tmi!

Also at this for 3-4 years my son is 6. Keeps getting reinfected.

amother

↑ Begonia ↓

Mon, Feb 12 2024, 12:14 pm

amother OP wrote:

You say “these kinds of programs” what does that mean.
You mean no dairy and no gluten?
Has anyone stopped those and found enco stopped?

It means addressing the many different factors that are going on here. It's not just going to be 1 thing.

amother

↑ OP ↓

Mon, Feb 12 2024, 12:20 pm

amother Orange wrote:

And your kids are backed up with poop when they have parasites?

amother

↑ OP ↓

Mon, Feb 12 2024, 12:29 pm

amother Orange wrote:

Eventually yes.
When I treat they start going regularly like magic.

Could he have it for 3 years with never having itching?
He wakes up multiple times a night but that’s the only indication of this.

amother

↑ Canary ↓

Mon, Feb 12 2024, 12:40 pm

amother Orange wrote:

Can you share what’s herbs you use to treat?

amother

↑ Orange ↓

Mon, Feb 12 2024, 12:48 pm

amother OP wrote:

This has been going on for 3 years, can it be pinworms for 3 years? None of my other kids have it and he doesn’t itch.also I know it’s a GI backup because we get X-rays. Does this still mean pinworms?

Yes if untreated it usually stays.
Some are more susceptible. Also how do you know for sure other kids (or adults for that matter) dont have it? Not everybody has symptoms.

I can't tell you if it definitely is though!

amother

↑ Lemonchiffon ↓

Mon, Feb 12 2024, 12:49 pm

amother OP wrote:

I don’t think it’s pinworms in my sons case because he’s had this for over 3 years and no itching at all and we’ve never treated him for it

I agree with you that its probably not pinworms. How old is your son? My GI and I both agree that with my daughter at this point its behavioral and I am literally just waiting for her to start caring and then I will insist she sit on toliet at set times etc. BH though the ezlax is preventing backup and I can live with a little poop on her underwear twice a week.

amother

↑ Orange ↓

Mon, Feb 12 2024, 12:51 pm

amother OP wrote:

Could he have it for 3 years with never having itching?
He wakes up multiple times a night but that’s the only indication of this.

My kids don't itch. They don't even wake up!
Still, I've seen the worms with my own eyes!

amother

↑ Orange ↓

Mon, Feb 12 2024, 12:52 pm

amother OP wrote:

How do you treat it?

Reese’s, or Paraguard from zahler's, or both
(Reese’s requires only 2 doses. Doesn't hurt to try. If you see that's it you might want tomgive more to make sure it's all gone)

amother

↑ OP ↓

Mon, Feb 12 2024, 1:10 pm

amother Lemonchiffon wrote:

He is 6. It’s not poop in underwear twice a week it’s huge accidents and pee leaking. But it’s only after 3 months of being fine after a clean out

amother

↑ Lemonchiffon

Mon, Feb 12 2024, 2:04 pm

amother OP wrote:

He is 6. It’s not poop in underwear twice a week it’s huge accidents and pee leaking. But it’s only after 3 months of being fine after a clean out

We used to have huge accidents in underwear too, and the pee most definitley starts leaking when they are backed up Sad

I had the same thing before we started with the daily laxatives.

I am just curious what cleanout you do. Maybe you need to do it more often. My GI wanted me to do a miralax gatorade cleanout every weekend but my daughter refused to drink it and I didnt see a difference so I stopped.

I know you he is taking magniseum and and laxatives daily but it sounds like you need to switch that up and find a daily maintaince laxative that works to prevent backups. How often is your son actually going number two. If he is not going almost daily than whatever daily thing he is on is not working.

My daughter pretty much goes every day. If for whatever reason I don't give her the laxatives she doesnt go that day. My daughter is 8 and while her problem is far from solved, the daily laxatives really keep her system moving and we are at a manageable point.

amother

↑ OP ↓

Mon, Feb 12 2024, 2:09 pm

amother Lemonchiffon wrote:

We used to have huge accidents in underwear too, and the pee most definitley starts leaking when they are backed up Sad

Unfortunately we do hospital clean out. That’s the only thing that works because he refuses miralax and mag citrate. We’ve also tried mag citrate in capsules 4 around the clock for 2 days, got a lot out but not everything.

If he takes meds he goes Every day but isn’t fully emptying. He’s on 4 exlax and mag citrate daily.

amother

↑ Orange ↓

Mon, Feb 12 2024, 4:12 pm

amother OP wrote:

That must be tough!
I really think you should give treating for pinworms a shot. Reese’s is just 2 doses of 1 tsp each. Once on day one and again 10-14 days later.

Even if that likely won't be the end of it because these kids tend to get reinfected easily, at least you'll know why it happens and avoid the hospital clean out.

You also said your daughter wakes up and has #1 accidents so she's possibly also infected. Is she the one right after your 6 yo ds? Do you have more toilet trained kids or only these 2?

Shabbos was rosh chodesh. That's often a time in which pinworm symptoms worsen. Did you see any worsening since thu/fri?

amother

↑ OP ↓

Mon, Feb 12 2024, 6:49 pm

amother Orange wrote:

I really don’t see how it could be pinworms that was not detected for 3 years and he hates meds so I don’t want to force him to take something unless I am absolutely sure

I don’t have another kid with this issue. Maybe that was a different poster.
No, no worsening since Thursday.

amother

↑ Begonia ↓

Mon, Feb 12 2024, 6:51 pm

amother OP wrote:

Parasites can go undetected for years