Newborn with Down Syndrome; Mother needs resources

Diamond Member Joined: Nov 20 2005 Posts: 4364

Rabbi Baruch Rabinowitz is amazing with supporting families of newly diagnosed children. If you want his phone number please PM me.

You should also have her call downsyndrome. She's been there, done that and has great advice and support to offer.

The most supportive people are mothers that have been there.

Platinum Member Joined: Nov 30 2006 Age: 25 Posts: 8559

Gold Member Joined: Nov 14 2004 Posts: 1525

You would be surprised, or sadly maybe not, at how many people said"oh! I'm sorry" & only thought afterwards to add mazal tov.

Gold Member Joined: May 20 2007 Posts: 2124

But you know something, you cant really blame anybody. When I was not so familiar with kids with special needs, I didnt look at kids with ds either. Nowadays, it became part of my everday life. I think they are adorable. I have a sil who has a son, and two nieces with daughters, and they are fressable. We all love them to pieces.
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Rule of thumb:
Always, always, tell new parents of baby "Mazel Tov!!". The bigger the challenge that the child was born with, the bigger the 'mazel tov' should be!!

The Goldstocks have also adopted a boy with DS, who by now is most likely a bochur. I used to be in touch with them. They have a Mendel and their daughter is Sarah'la (Mushka). Very lovely people. It's been eons ago since I spoke to them....

http://www.einstein-syndrome.com/

Also, look into Nutrivene - special vitamin formula for Downs Syndrome children and adults.

Platinum Member Joined: Nov 30 2006 Age: 25 Posts: 8559

Thank you!

I compiled a lot of the info here together and printed it out. I also included a bunch of articles from DSAU.org.
Thank you, d.s.!!
(BTW, I enjoyed reading your site a lot. I also went through some articles I saved from high school- and I found one by you, "Making up for Moishy.")

So anyone who volunteered to speak to the parents, they might call soon if they decide to.