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A Very Special Wedding
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DefyGravity  




 
 
    
 

Post Wed, Jul 19 2006, 2:06 pm
Someone posted this on H.com, I read the article and thought I'd share it here too.

http://www.time.com/time/magaz......html
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yedidya's mom  




 
 
    
 

Post Wed, Jul 19 2006, 3:24 pm
I'm not sure abt the whole indian ceremony thing, but I'm definitely hoping my little boy with down syndrome will one day be zoche to get married as well- preferably under a chuppah Very Happy . But I guess at 1 yr old it's too early to start asking around abt cute little girls with down syndrome . still, were open to suggestions. lol. He is quite a cutie. I have yummy pics to prove it.
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Mama Bear




 
 
    
 

Post Wed, Jul 19 2006, 3:29 pm
the couple in the picture do not look like they have Down Syndrome! The girl has a bit of a DS look but the boy doesnt... what gives?
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  yedidya's mom




 
 
    
 

Post Wed, Jul 19 2006, 3:33 pm
Thats just another stereotype that all ppl with down syndrome have the same exact "look". while there are def. specific markers they can be more or less distinct in diff. people I.e the eyes. another thing that makes a big difference is if they have control over their mouth and tongue or if the tongue is sticking out.
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MommyEsty




 
 
    
 

Post Wed, Jul 19 2006, 3:36 pm
such a sweet story!
ds's so want to get married too!
my aunt has ds brother that lives with them hes in his 30s and he has asked all my couisens to marry him plus me and basicly most of teh girls that come into that house, he is so sweet I hope he can get married one day!
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binah918




 
 
    
 

Post Wed, Jul 19 2006, 3:39 pm
Beautiful Story!
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Hashem_Yaazor  




 
 
    
 

Post Wed, Jul 19 2006, 3:55 pm
There are different levels of DS and how much one appears as the stereotype, also different degrees of medical problems...can't lump them all together.
Incidentally, not everyone with DS is sterile...some can have kids.
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  DefyGravity  




 
 
    
 

Post Wed, Jul 19 2006, 3:58 pm
Yes, and according to the article, the chances of a couple w/ DS giving birth to a DS baby is very high.
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  Hashem_Yaazor  




 
 
    
 

Post Wed, Jul 19 2006, 4:01 pm
DefyGravity wrote:
Yes, and according to the article, the chances of a couple w/ DS giving birth to a DS baby is very high.

It depends on a couple factors, but yes the rate would be higher, mainly because it's a chromosomal abnormalty that is inherent in all the DNA and could very likely be transferred during meiosis.
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southernbubby




 
 
    
 

Post Wed, Jul 19 2006, 4:20 pm
What the article said about people with developmental disabilities is that when they reach adulthood, their social prospects dwindle. That is the problem that I have with any school inclusion program that isolates such an individual from other such individuals. They might be included when they are still in school but that changes as classmates go on to other things and forget about them. Unless they are socially involved with other disabled people, they might be very lonely.
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mumsy23  




 
 
    
 

Post Wed, Jul 19 2006, 4:32 pm
that is a very good point southernbubby. I always thought of inclusion as the best possible option for disabled people but your point shed a knew light on my oppinion. hmm....
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Rochel Leah




 
 
    
 

Post Wed, Jul 19 2006, 9:24 pm
I think it is very beautiful.

My second cousin w/ DS just got married to someone w/ DS .I spoke to her on the phone..she sounds so happy.

There is also a frum couple in montreal that are both DS, their parents help them out but they have their own apartment and feel good abt themselves as a couple.
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downsyndrome  




 
 
    
 

Post Wed, Jul 19 2006, 9:30 pm
I am e-mail friends with the chosson, Sujeet, and with his mother, Dr. Sindoor Desai. Dr. Desai sent me an e-mail with pictures attached, several days ago! I sent her back a very warm mazel tov message.
Sujeet and Carrie both do have Down syndrome. They are both very bright and Suj is exceptionally talented with musical instruments.
I would assume that procreation is not one of the purposes of such a marriage.

I have two girls (so far!) lined up for my son with DS. Each time he doesn't behave appropriately I tell him, "Moishey, there are two girls lined up who might want to marry you. You had better behave, or else....!!!"

I think this wedding of Suj and Carrie sheds new light on this population and gives new hope to so many.
In the interview I gave the Hamodia in their Pesach edition, I also finished by saying that I hope to marry Moishey off one day. Some people loved it; others thought I was living in fantasyland.
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  DefyGravity  




 
 
    
 

Post Wed, Jul 19 2006, 10:07 pm
mumsy23 wrote:
that is a very good point southernbubby. I always thought of inclusion as the best possible option for disabled people but your point shed a knew light on my oppinion. hmm....


So what's the other option? No interaction with their peers in school? Just because someone might have a hard time socially after high school, doesn't mean that they should be isolated during their high school years. By mainstreaming special needs kids when they're younger, they will be more prepared socially in the future. Most likely, it won't make things worse for them.
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MOM222




 
 
    
 

Post Wed, Jul 19 2006, 11:20 pm
DefyGravity wrote:
Yes, and according to the article, the chances of a couple w/ DS giving birth to a DS baby is very high.


I once heard that most DS boys are sterile. Is that a myth? Confused
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  downsyndrome




 
 
    
 

Post Wed, Jul 19 2006, 11:40 pm
MOM222 wrote:
DefyGravity wrote:
Yes, and according to the article, the chances of a couple w/ DS giving birth to a DS baby is very high.


Quote:
I once heard that most DS boys are sterile. Is that a myth? Confused


The fact that you wrote 'most' helps. If you would have written 'all' then we could have most likely said that it's a myth; but with 'most' I'm afraid there's a lot of truth to it. It's kind of hard to get accurate facts such as this one, because only over the last few years has there been such a turnaround with the acceptance and attitude towards the DS population. So, there is really not much in their history to be able to base statistics on - no marriages, no births, etc.
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Crayon210




 
 
    
 

Post Thu, Jul 20 2006, 12:11 am
I also had thought that boys with DS are sterile, and that girls with DS have a 1/4 chance of having a baby with DS.
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shopaholic




 
 
    
 

Post Thu, Jul 20 2006, 11:22 am
Wow! What a sweet article.
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Motek




 
 
    
 

Post Thu, Jul 20 2006, 2:55 pm
Hashem_Yaazor wrote:
mainly because it's a chromosomal abnormalty that is inherent in all the DNA and could very likely be transferred during meiosis.


Very likely? How could it NOT be transferred?
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luv2beamother




 
 
    
 

Post Thu, Jul 20 2006, 3:05 pm
defy, cant the other option be to have the ds child in a special school with children like him? What's the gain in mainstreaming, when in truth, the child is diff. then the kids in his/her class, and will never be fully accepted. Most likely he/she will always feel different.
What does it do for the child's self esteem?
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